About Me

I am a first-time mom at 40 who has not had an easy time of it.  Suffering from pre-eclampsia, I was put in the hospital at 32 1/2 weeks and had a C-section a day later.  My daughter was in the NICU for 3 weeks with no complications, but put back in the hospital three weeks later with a respiratory infection.  From that, an enlarged heart was discovered and she will be in need of a heart transplant.  At almost four months old, M weighs only seven pounds and has been through more medical treatments than I’ve seen in all my 40 years!  But, she is a trooper.  I have to think that we were chosen to have this experience for some larger reason. 

In my other life, I am a college instructor of Communication Studies.  I am an intercollegiate speech and debate coach.  I plan to use my speaking expertise, as well as this blog and other social media to spread the word about pediatric cardiomyopathy, a rare, but deadly disease that often goes undetected.  We were lucky.  M’s heart problem was discovered after she was hospitalized with respiratory problems.   But, many baby’s problems go undetected until their heart fails, sometimes with deadly consequences.  If treated, many of these children can go on to live happy, healthy lives.  But, with only twelve children out of every million suffering from it, it isn’t something most people know to ask about and it isn’t something that is routinely looked for in children. 

I have many causes I feel are important.  My mom is a three-time cancer survivor, so cancer research and treatments are something I rally around.  Since M was a preemie, I also have seen the importance of being able to treat these itty bitty babies and keep them healthy and growing.  And now, with M’s recent diagnosis, I have to say that cardiomyopathy and trasnplantation will become an important cause in my life!

If you have questions or would like to share stories about any of the things I write about on this blog, please feel free to email me at bk2nocal@gmail.com.  I would love to hear from you!

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